“..Before the prospect of living less than everyone else, I have decided to live faster, more fully…” Alexander Dumas – la dame aux Camilles Lately, I have been thinking about this subject quite a bit especially since one of my dearest friends has been diagnosed with terminal disease. For the first time this inContinue reading “Dealing with end stage Parkinson’s disease- the long goodbye: By Dr. De Leon”
Category Archives: caregivers and chronic illness
Parkinson’s disease and The Work Place: By Dr. De Leon
This is a classic picture of one of my all time favorite comediennes with a well known skit. Every time life comes at us fast, this is what I am reminded of. Sometimes no matter how hard we try, we have to swallow some of the stuff coming our way in order to keep moving forward. As I haveContinue reading “Parkinson’s disease and The Work Place: By Dr. De Leon”
El cambio de papeles- Dra. De Leon
Al continuar la campaña de #EndParkinsons ( #terminemos con él Parkinson) este mes de abril reconocido como el mes de hacer conciencia por la enfermedad que afecta casi 10 millones de habitantes al rededor del mundo no debemos olvidarnos de aquellos que dan de su servicio y amor incondicional para cuidarnos. No cabe duda queContinue reading “El cambio de papeles- Dra. De Leon”
When Roles Change-By Dr. De Leon
As we continue to raise awareness for the nearly 10 million people suffering from Parkinson’s disease worldwide, we must not forget the unsung heroes who stand by our side day in and day out. There is no doubt that caring for a Parkinson’s person takes an entire village… The care partner who maybe a friend,Continue reading “When Roles Change-By Dr. De Leon”
The Top 10 SPOOKY Things Living with PD which Can Send a Frightful Scream! : By Dr. De Leon
1. Getting PD Diagnosis– this can suddenly make your heart stop beating – feels like you have flat lined until a helpful friend comes along. 2. Losing control of your mind. I get off the car to check the mail only to see my car rolling down the hill because I just step out withoutContinue reading “The Top 10 SPOOKY Things Living with PD which Can Send a Frightful Scream! : By Dr. De Leon”
How to Deal with Loss of a Loved One due to PD: By Dr. De Leon
If tears could build a stairway and thoughts a memory lane I’d walk right up to heaven and bring you home again. (poem: if tears could build a stairway to heaven- unknown) When I was in New York City last week I had the pleasure of meeting many great people including this wonderful team ofContinue reading “How to Deal with Loss of a Loved One due to PD: By Dr. De Leon”
Instructions not Included When it Comes to Caregiving: By Dr. De Leon
Instructions not Included When it Comes to Caregiving: By Dr. De Leon.
Instructions not Included When it Comes to Caregiving: By Dr. De Leon
Don’t dwell on the disease. Value the moments, the pearls of wisdom, their smile, their humor.” St. Elizabeth Caregiving is not for the faint of heart. I have had to be the caregiver for two of the people I love, my grandmother and father. Although the experience was extremely rewarding, I was left completelyContinue reading “Instructions not Included When it Comes to Caregiving: By Dr. De Leon”
Cómo Mejor Aprovechar de su Visita con su Neurólogo /Especialista de Desórdenes de Movimiento :By Dr. De Leon
Se que muchos de ustedes han expresado su descontento y frustración con sus visitas con sus especialistas porque comúnmente sus preguntas de mayor urgencia no son contestadas a su satisfacción ó con la rapidez adecuada. Esto es difícil especialmente para nosotros los que vivimos lejos de nuestros especialistas. No podemos hacer los viajes con laContinue reading “Cómo Mejor Aprovechar de su Visita con su Neurólogo /Especialista de Desórdenes de Movimiento :By Dr. De Leon”