Source: Dealing with the 50 shades of pain in Parkinson’s to avoid addiction-by Dr. De Leon
"I AM"- are the two most powerful words in the dictionary because the ending determines your destiny….so join me in my fight against PD to make sure that everyone who suffers from this chronic progressive degenerative disease can develop the courage to shout to the wind- I AM Fierce and Courageous ….
3 thoughts on “Dealing with the 50 shades of pain in Parkinson’s to avoid addiction-by Dr. De Leon”
Once again, dear Dr. DeLeon, you are “spot on” with your choice of topic and complete, knowledgeable and easily understood comments and advice ! The two issues I am dealing with at the moment you chose to cover,,,
Back pain – it is becoming so clear that most of the PWP that I know have it ! The way you broke down the area, various causes, and effective treatments is so helpful ! One of the treatments I have shared with my Support Group is pickle juice-
when the deep cramping of a Dystonia-type muscle seizing in the night is so awful it makes one cry out in pain, it really helps ! I used to keep it at my bedside (how romantic – eh? HA!) I now take a 1/2 to a whole Baclofen one hour before sleep, and thank the Lord, haven’t had a bad one in months !
Ketogenic Diet – Until you mentioned the possibility that this type of eating was touted to reduce tremor, I really didn’t know why some Doctors were pushing this diet. I recently attended a PD conference in Baton Rouge, and the main speaker highly recommended Keto Diet for PD patients. I had heard of it many years ago, and, like you, thought it to be way to much discipline for me and very restrictive! Well… I looked it up online, and found a plethora of information, recipes, blogs, etc. So I gave it a try. For me, a woman who loves Mayo, cheese of all types, sour cream, it was doable. I ate mountains of mashed Cauliflower, Tacos made with a baked and formed cheddar shell, and something akin to “Mug cake” made with Almond flour. If I had nothing else to do in my life but to make and enjoy new recipes, I may have made it. I was down 11 pounds, was getting used to drinking more water than I have ever consumed in my life, and for the first time, wasn’t hungry.
The protein was satisfying me. But , boy – did I miss bread ! My nursing background could not let this go on any longer, & I made an appointment with my PCP and did blood work. Sure…my Cholesterol & Triglycerides were both up ! Not being a person that is fond of being on Statins, I opted out of “KETO”. For the last month of the “Diet” I was put on Rytary. To begin, I was using samples of course. Yesterday I filled my first RX….clearly marked on the bottle was the caution:
“DO NOT TAKE WITH A HIGH FAT DIET !” Ha! Each day is filled with a challenge and a lesson-Si? 🙂
thank you for input..best of luck
yes pickle juice or a packet of mustard always come in handy for cramps.