"I AM"- are the two most powerful words in the dictionary because the ending determines your destiny….so join me in my fight against PD to make sure that everyone who suffers from this chronic progressive degenerative disease can develop the courage to shout to the wind- I AM Fierce and Courageous ….
2 thoughts on “Do it with passion or not at all: By Maria De Leon”
Good morning. I just finished reading your wonderful article. I was diagnosed with PD this past March but I also have MS. I’m open for advice- especially regarding fatigue. The only medication I take is Sinemet and Lexapro.My neurologist explained to me my right side is PD and left side-flop foot is MS. I go to Rock Steady Boxing three times a week and absolutely love it! I also do the LVST big movements. Of course balance is an issue, I keep reading any information available. My neurologist tells me to put PD on the back burner- very difficult when you just don’t feel good. I have been eating a lot of greens and vegetables as well. I am looking forward to hearing from you. Thank you
thanks for sharing your story with me. i empathize with you illness- it can be extremely hard living with a chronic illness. fortunately as i have sated before there are so many new meds for treatment of MS although still no cure- life can be made a lot easier and more manageable. the key to treating ms is getting into a right Doctor ( as with any other chronic illness) who is up to date with all new treatments and listens to you and provide support physical and emotional, need to stay cool and hydrated but need to find the regimen that prevents attacks!! this is key. i don’t know your clinical history so i am assuming that you don’t have both ms and pd but rather parkinsonism caused by ms? this is the most common scenario- good news is that if this is the case your – parkinsonian symptoms will not progress and might even improve as brain repairs itself from plaques similar to strokes- so doing PT,OT,ST extremely important. if you need symptomatic treatment for pd is fine but need to work on getting ms stable- many people with chronic illnesses especially MS have severe fatigue. i usually treated with amantadine which worked very well and in your case you might not need other pd meds because amantadine also a parkinsons medicine and might control the symptoms you have. speak to your neurologist about treatments for fatigue. can look at my blogs on defeatparkinsons.com on the subject as well. best of luck!